Sending Birthday Wishes to Heaven

On this day 11 years ago, God blessed our family with a very special angel.  My sister’s 1st born son.  She named him Khaleeq.  I didn’t know it at the time, but my sweet nephew was about to change my whole life.  He changed all of our lives, but for me he saved me from a road of destruction.  I am a very different woman today.  I fell in love with Khaleeq the moment I saw him being born.  I soon discovered that I couldn’t love him and live the life I was living.  I changed to be around him and to love him more.  This was long before we learned that he had a devastating terminal genetic disease.

He was a happy baby that seemed perfectly normal.  Smiling, talking, babbling, eating, and playing.  The worries of why he wasn’t walking started as his 1st birthday approached.  My sister consulted his doctor and was told everything from “boys are slower” to “your probably holding him to much.”  When he was 16 months old, he fell off of my sister’s bed.  She rushed him to the ER at Texas Children’s Hospital.  His CAT scan revealed that the fall did not hurt him, but they found that he had a rare genetic disease called Metachromatic Leukodystrophy.  After we read what this disease would do to our precious Khaleeq, none of us could believe it.  It literally knocked the wind out of each of us.  He did undergo a bone marrow transplant in 2002.  But it failed.  Most of the doctors informed my sister that Khaleeq would most likely not live past the age of 4.  God had other plans though, as He usually does.

I know that Khaleeq’s life was hard.  I know that he suffered, but I like to think that he lived so much longer than expected because he was constantly surrounded by love.  We ALL lived together in a large house my mother bought.  We all helped taking care of Khaleeq.  Even when my step daughter stayed with us during the summer, she would help give him his medications.  Sometimes she would lay down next to him and read to him.  Everything we did, we tried to include Khaleeq the best way we knew how.  I believe in spite the aliments his body had to endure, he was happy and felt very loved.  Everyday of his life he had us around him loving and caring for him.

He passed away last October 7th.  Just 7 days after he turned 10.  I remember as a kid, how special it was to reach those double digits.  He did it and he took that small victory with him to heaven.  I believe that he is running in heaven.  It is something he never could do here.  I believe that he misses us, but he is happy.  I believe that he is watching over us and loving us more and more everyday.  I believe that he saved me from a life that was going nowhere fast.  I believe that I will see him again someday.  I believe that he walks along side of Jesus as he tells Him silly story’s about us.

When Khaleeq was just a few days old, I remember looking at him and realizing I never want to let him down.  I still never want to let him down.  My heart aches with such pain because I miss him so much.  It hurts too, that I am so far away from my family and I can’t be there for them today and throughout this week.  I love Khaleeq and that love continues to grow to this day.

I wanted to share a little of his story with y’all.  Some of you have become wonderful new friends.  I want to share with y’all a few of my favorite pictures of Khaleeq.  All week I’ve been asking myself if I wanted to do this on his Earthly Birthday or his Heavenly Birthday.  I decided that I want to do this today, because this is the day God sent down His precious angel to our family. 

Sweet baby Khaleeq
My sister Nori and Khaleeq
Christmas 2001
My husband David, Khaleeq and my brother Jaddy watching Tough Enough

Khaleeq at his Make-A-Wish Extravaganza Party
Khaleeq at a Make-A-Wish B-Ball game with his Uncle Jaddy and Mommy.

Khaleeq’s 4th Birthday

5th birthday surrounded by Maria, Teresa, Gabe, Jacob, Maranda, Lauren and Zane

5th Birthday

Khaleeq smiling at his 5th birthday party.
Halloween 2004

Khaleeq with his sister Angeleeq. She’s a monkey and he is the banana…so sweet!

Halloween 2008
Khaleeq’s 7th birthday party

Khaleeq with his baby sister Angeleeq

Hanging out with his cousins Zane and Maranda
We have such handsome men in our family. My husband David, brother Jaddy, my Dad Jamil and Khaleeq

My mom Barbie, Khaleeq, Troy, April, Nori, Angie, Me, David and my Dad

Nori with Khaleeq on his 10th birthday.
If you would say a prayer for my sister Nori and her family today. My Mom and Dad were also very close to Khaleeq, say a prayer for them as well. They are in Houston with out my Brother, my Sister and myself. I miss them very much. I know today will be a very hard day for them. Thank you so much for reading this. 

I made Khaleeq a birthday cake on his earthly birthday.  You can see that HERE. And read about his heavenly birthday here

My sister’s poem to Khaleeq written on 10/07/2010:

I went to your grave this morning after class.
I laid down on the grass next to your stone.
I remember when I would lay next to you in
all those hospital beds.
Watching your monitors all night long.
Running my fingers through your soft curly brown hair.
Falling asleep while gently patting your chest.
I tried to protect you from as much as I could.
Now I know that you have been protecting me from the start.
I am the disabled one.
Disabled from my grief and pain.
I closed my eyes and imagined you one looking down on me.
Helping me remember of what life should be.
I am so proud to be your mommy.
It warms my heart to think your soul is free.
I only have my imagination of what heaven will be.
I miss you and love you Khaleeq.
Love your mommy 

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78 thoughts on “Sending Birthday Wishes to Heaven”

  1. Oh, how painful, I always try to figure why God gives burdens to some people. I guess Khaleeqs purpose was what he brought and the blessings he gave to everyone in his life, and then they are called home. Thank you for sharing his life, I can't help but feel sad for his Mom and all of you…..Ah, but one day! This is the true meaning of blogging, we all really care.Carol

  2. Ami, your family was blessed with a sweet angel. Thank you so much for sharing your story and pictures. My prayers have been said for you and your family. I am in tears an at a loss for words having lost someone as well a little over a year ago. Our family has been wearing a yellow bracelet with his name and it helps us remember him and the memories everyday. I wish you and your family peace and I am happy to know that your nephew is sitting with our father in heaven. He is smilin down on you everyday!

  3. What a beautiful post! It's amazing how a single person, even a baby, can completely change us. What a blessing to have known him for so long! I love those pictures with his sister! I love the one with them sleeping together! So so sweet!

  4. Oh my goodness this was so sad! He is an angel looking over his family now. I am so sorry he had to suffer. He is so loved and the power of that love carried him through it all. My thoughts and prayers are with him and all of you!Mama Hen

  5. Wherefore seeing we also are compassed about with so great a cloud of witnesses, let us lay aside every weight, and the sin which doth so easily beset [us], and let us run with patience the race that is set before us, Looking unto Jesus the author and finisher of [our] faith; who for the joy that was set before him endured the cross, despising the shame, and is set down at the right hand of the throne of God. Hebrews 12:1, 2Khaleeq is a part of that "cloud of witnesses" and he is cheering you on even when times get hard – especially when times get hard. This verse also says that there is "joy" to attain in Heaven – you know my friend – Khaleeq is experiencing life to the fullest!And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away. Revelation 21:4♥ Praying for you and your family ♥

  6. What a beautifully written post – I need to go get many more tissues! I'm thinking about your family and wishing you all peace and support at this time of year.

  7. Thank you for sharing such an inspirational story of a very courageous young boy. I am sure he will continue to live on and touch the lives of many through his story. This is such a reminder of how precious life is and how important it is to cherish the ones we love and not take this life for granted.

  8. Thank you so much for sharing about your nephew. It so clear how surrounded by love he was. What a special family he was a part of. I love the first part of your post, because my 1st son too, saved me from a life that could have ended in destruction. I knew I had to change the way I was living, and if not for him, I don't know that I would have. What a beautiful tribute to your nephew.

  9. This was heartbreaking but beautiful at the same time. The impact he made in your life and memories will be with you forever.What a precious angel. I hope he is in a better place and like you said, is running free. Hel ived past expectations that shows just how much all the love your family gave him made him strong.At the end of this post I stopped and prayed for your sweet nephew to be in a good place, happy, without pain, I prayed that God gives you all strenght and allow him to watch over you.My blessings and prayers are with you on this difficult day.

  10. I'm praying now … and thank you for sharing his life with us. I'm so so sorry … but believe that he was here for all of us (maybe for me just by reading this blog, but still – for all of us. He touched more lives than ever could be imagined.)Thank you, again, and my prayers and thoughts will be with all of you as you heal from the pain and remember the good in this beautiful boy.

  11. God bless your family. What caught me the most, was the amazing smiles on everyone's face. Clearly he brought a ton of joy to your lives.PS – Found you through Mama Hen!

  12. It is so hard not to sit her and cry at such a touching post. My heart and prayers are with your entire family. It sounds as if he was truly an angel sent to earth for so many reasons. He has changed yours and others lives.HugsColleenShibley Smiles

  13. What a moving story! It's so heartbreaking when kids get sick but it's nice knowing how positively he affected your family. Visiting you from Mama Hen's Nestwork.

  14. what a moving story of your nephew. thank you for sharing this with us.. and the precious pictures.Sending prayers for Nori and all of you!!

  15. I have to tell you that I love you so much. I am sitting here with a lone tear in my eye. I was very moved by your blog and the comments from your acquaintances. Jaddy and I spent a good deal of time at my desk, looking over the photos of your blog and commenting to each other about the surrounding memories and how happy Khaleeq makes us. Thanks for your post. It is a great forum for anyone come and reflect and get to know a bit about pure love. It adds a little more silver to the lined clouds that frames this special day.I love you.

  16. Thank you so much for sharing your story. It is very moving and inspirational! You have a beautiful family and looking at these pictures and seeing the love you have for each other is very heartwarming. What a joy Khaleeq brought to your lives! Heaven has gained a rare treasure indeed! Your Friend.. Anna 🙂

  17. Hi, Ami-I'm visiting from Mama Hen's Nestwork. Isn't it amazing how God works?! The life of one little boy touched and lifted up so many others…and the numbers continue to increase as evidenced by the number of above comments and those yet to come. May God bless you and your family as you remember your nephew on his earthly birthday.

  18. I avoided reading this all day because after you and I exchanged emails a couple of weeks ago and you shared his story with me, I looked up that horrible disease and just started bawling. I knew if I read your tribute, I'd start crying at my desk again, and I am. This is such a deep, touching post, full of so much love and loss. Beautifully expressed, Ami. My prayers are with you.

  19. You don't know me but I was deeply moved by your post. I'm so happy that you had Khaleeq in your life, he does seem like an angel on earth. My heart breaks for you and your family for what you lost. xo

  20. Thanks for sharing this very personal journey with all of us. What a beautiful boy y'all had the pleasure of knowing and loving. Be assured you, Nori, grandma and grandpa AND the whole family is in our thoughts and prayers this hardest of days. ~hugs~

  21. Hi,I broke my heart and i burst in tears reading this post! Hoping you to stay strong every day! praying to get stronger every day…God is with us! I know it is hard for you to share this with us but i want you to know i have this experience too.

  22. What a touching tribute! I can not stop tearing up. You and your family are in certainly in our thoughts/ So much love that beautiful young man knew wow. xxxx

  23. Dear Ami,I am visiting from Mamanestwork and I am your new follower.I am so so sorry for your loss. but our loss of loved ones on earth is God's victory in His kingdom. God love Khaleeq more and wants all him to have painless eternal life in heaven. Keeping you and your family close in prayers.And looking forward to read more beautiful posts from you.God bless.

  24. Stopping by from Mama's Little nestwork. I'm so sorry for your loss! As hard as it was for me to see all of the photos of your nephew struggling through life, I loved all the loving family support he seemed to have! God bless you and your family in your time of sadness. Sending prayers of peace your way.

  25. Thank you for sharing this beautiful post with me. I just lost my cousin last October to hypoplastic left heart, a disease he was born with. The doctors said that it was likely he would not live past 5, but we managed 20 years with him. Those extra years were truly a blessing, just as your extra years with Khaleeq. I will keep your family in my prayers.

  26. Thank you for sharing this very personal and touching story. You did a great job of portraying what an amazing little by your nephew was and how his story has impacted the lives of you and your family. Happy birthday, Khaleeq!

  27. Oh gosh, Ami, your words about your nephew were so powerful and really beautiful. It is obvious that Khaleeq was loved so much and he was indeed a blessing. My heart aches for you and your family and I will say a little prayer for all of you. Thank you for sharing. Happy Birthday Khaleeq! xoxox

  28. What a beautiful post Ami, I'm so sorry for your loss. It sounds like his life was so full of meaning, and he came to lift others and bring a special spirit to your lives. Thanks for sharing this special post, what a sweet inspiring post.

  29. What a lovely, touching post about a special boy who was so loved and adored but it is so heart breaking. I am sorry for Khaleeq's suffering and for your family's loss.

  30. Hey Ami, wow, wasn't expecting that. I am so sorry for your loss, and my thoughts are with your family. How incredible that he survived as long as he did, more than double what the doctors said. I know it must have been all the love and support that kept him going, but ultimately you know when it's just too painful. Your sweet nephew is surely loving you for paying this incredible tribute to him. You are such a sweet soul, and now I know that if even in a small way Khaleeqs being on this Earth made you even a better person. Thanks for sharing, it was truly loved. Bella

  31. What a sweet story! God gives us trials to learn and grow…Khaleeq was blessed with the opportunity to help everyone else learn with him.May your entire family be blessed with peace and joy during this difficult time!

  32. I was really touched by this post. I especially like how you say that Khaleeq changed your life. God is amazing! Khaleeq is rejoicing in Heaven!Patti at Grateful Heart

  33. I, too, am in tears. I am sorry for your loss, but happy that he changed your life in such a positive way. You have a very strong family and an angel watching over all of you now.

  34. What a beautiful tribute to your nephew, I am in tears. I will definitely say a prayer for your sister, your parents, you and the rest of your family. I am so sorry for your loss.

  35. Dear AmiWhat a beautiful story! I truly believe that Heavenly Father blessed your family with one of His Angels! I can imagine your family pain but our family one day will be together and will understand all this things. Your family will be in my prayer.Ana Brown

  36. Such a beautiful, precious little boy! Thank you for sharing your story. You are your family are being lifted in prayer. I am praying that God will fill you with peace and comfort knowing that you will all be together again in heaven for eternity.

  37. Ami, I'm so sorry for your family's loss. Khaleeq was surrounded by so much love. You have a wonderful family. Thank-you for sharing your story during this most difficult time.

  38. Oh boy. I am crying… such a sad story. I am so glad to read about how much he was loved though. What a sweet precious little boy! It breaks my heart to hear about his suffering and death. My heart breaks for your sister. But I am happy to think about him in heaven WALKING with Jesus, where there are no tears, pain or suffering! Looking down on you and your family with love! *huge hugs* to you and your sister and Family. Thank you for sharing her story. You have such a tough, brave and LOVING family!

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