He was a happy baby that seemed perfectly normal. Smiling, talking, babbling, eating, and playing. The worries of why he wasn’t walking started as his 1st birthday approached. My sister consulted his doctor and was told everything from “boys are slower” to “your probably holding him to much.” When he was 16 months old, he fell off of my sister’s bed. She rushed him to the ER at Texas Children’s Hospital. His CAT scan revealed that the fall did not hurt him, but they found that he had a rare genetic disease called Metachromatic Leukodystrophy. After we read what this disease would do to our precious Khaleeq, none of us could believe it. It literally knocked the wind out of each of us. He did undergo a bone marrow transplant in 2002. But it failed. Most of the doctors informed my sister that Khaleeq would most likely not live past the age of 4. God had other plans though, as He usually does.
I know that Khaleeq’s life was hard. I know that he suffered, but I like to think that he lived so much longer than expected because he was constantly surrounded by love. We ALL lived together in a large house my mother bought. We all helped taking care of Khaleeq. Even when my step daughter stayed with us during the summer, she would help give him his medications. Sometimes she would lay down next to him and read to him. Everything we did, we tried to include Khaleeq the best way we knew how. I believe in spite the aliments his body had to endure, he was happy and felt very loved. Everyday of his life he had us around him loving and caring for him.
He passed away last October 7th. Just 7 days after he turned 10. I remember as a kid, how special it was to reach those double digits. He did it and he took that small victory with him to heaven. I believe that he is running in heaven. It is something he never could do here. I believe that he misses us, but he is happy. I believe that he is watching over us and loving us more and more everyday. I believe that he saved me from a life that was going nowhere fast. I believe that I will see him again someday. I believe that he walks along side of Jesus as he tells Him silly story’s about us.
When Khaleeq was just a few days old, I remember looking at him and realizing I never want to let him down. I still never want to let him down. My heart aches with such pain because I miss him so much. It hurts too, that I am so far away from my family and I can’t be there for them today and throughout this week. I love Khaleeq and that love continues to grow to this day.
I wanted to share a little of his story with y’all. Some of you have become wonderful new friends. I want to share with y’all a few of my favorite pictures of Khaleeq. All week I’ve been asking myself if I wanted to do this on his Earthly Birthday or his Heavenly Birthday. I decided that I want to do this today, because this is the day God sent down His precious angel to our family.
|Sweet baby Khaleeq|
|My sister Nori and Khaleeq|
|My husband David, Khaleeq and my brother Jaddy watching Tough Enough|
|Khaleeq at his Make-A-Wish Extravaganza Party|
|Khaleeq at a Make-A-Wish B-Ball game with his Uncle Jaddy and Mommy.|
|Khaleeq’s 4th Birthday|
|5th birthday surrounded by Maria, Teresa, Gabe, Jacob, Maranda, Lauren and Zane|
|Khaleeq smiling at his 5th birthday party.|
|Khaleeq with his sister Angeleeq. She’s a monkey and he is the banana…so sweet!|
|Khaleeq’s 7th birthday party|
|Khaleeq with his baby sister Angeleeq|
|Hanging out with his cousins Zane and Maranda|
|My mom Barbie, Khaleeq, Troy, April, Nori, Angie, Me, David and my Dad|
|Nori with Khaleeq on his 10th birthday.|
My sister’s poem to Khaleeq written on 10/07/2010:
I went to your grave this morning after class.
I laid down on the grass next to your stone.
I remember when I would lay next to you in
all those hospital beds.
Watching your monitors all night long.
Running my fingers through your soft curly brown hair.
Falling asleep while gently patting your chest.
I tried to protect you from as much as I could.
Now I know that you have been protecting me from the start.
I am the disabled one.
Disabled from my grief and pain.
I closed my eyes and imagined you one looking down on me.
Helping me remember of what life should be.
I am so proud to be your mommy.
It warms my heart to think your soul is free.
I only have my imagination of what heaven will be.
I miss you and love you Khaleeq.
Love your mommy